Rare Disease Foundation
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Address
4500 Oak Street, Room C234
Vancouver , British Columbia
Canada , V6H 3N1
Vancouver , British Columbia
Canada , V6H 3N1
Rare Disease Foundation
Description
The Rare Disease Foundation is focused on linking basic science and clinical practice to increase the efficiency of rare disease research. This model is called Translational Care. This model drives patient based, treatment focused research projects from disease characterization to treatment with greater efficiency. By incorporating research, astute clinician observation and parental knowledge into the various stages of rare disease research we impact the speed of discovery and the way rare conditions are managed.